Hi, I’m Jess. I’m the Disability and Inclusion Advocate and a Lived Experience Mentor at the MS Society SA & NT, and I’ve been in this role for about three and a half years.
In my work as a disability advocate, I support clients to exercise their rights. This might mean helping them access the NDIS, advocating for them throughout their NDIS journey, or supporting them with workplace rights. I also represent the voice of people living with MS, both within the organisation and out in the broader community.
As someone who lives with MS myself, my lived experience is the driving force behind everything I do. I understand the barriers, the discrimination, and the day-to-day challenges because I’ve lived them. That insight gives me the ability to deeply empathise with my clients, and to help them feel understood and empowered.
I also coordinate a peer support program for people who are newly diagnosed. It’s all about creating a safe, understanding space where people can connect with others who truly “get it.” While I’m not a counsellor, I’ve navigated life with MS, as a mother, a friend, and a young woman, and I’m here to talk about anything that might come someone’s way. Whether it’s a quick call or catching up over coffee, I’m available as much or as little as someone needs throughout their journey.
The most rewarding part of my role is witnessing the incredible growth in the people I work with, watching clients overcome challenges, build their confidence, and begin to believe in themselves again after a diagnosis. That transformation is powerful.
If you’re wondering how to support the MS Society SA & NT, there are plenty of ways to get involved. Join us for one of our fundraising events like the Mighty Swim or the MS Readathon, do it with your children! You can also follow and connect with us on social media to stay up to date and be part of our community.
For anyone newly diagnosed with MS, my advice is simple: be gentle with yourself. It can feel really overwhelming, and it’s okay to have a lot of emotions. Take one step at a time. Reach out to the supports that are here for you, and remember, you’re not alone.